A day like any other…. Well a day better than this time last year and worse than this time two years ago, but another day, pretty much the same as the day before.
This time last year Dylan was in hospital having blood transfusions, IV antibiotics, a wide range of medications, he was a little lighter weighing in at 40kgs, and vomiting two to three times a day. He was half way through his chemo, and looking forward to finishing treatment and Continue reading “Another Day”→
The face behind the smile.We often hear comments about smiles, these smiles remind us that these are children first and foremost, they are children who want to enjoy their childhood with all the innocence and laughter childhood brings. Sadly in the world of childhood cancer much of that innocence is replaced by the harsh reality of life with all its ups and downs, successes and losses. Those moments are rarely seen in a photo or on a video.
That smile has nothing to do with cancer, it’s only there because this is a child, who no matter what traumatic experiences they have endured and will continue to endure will still smile, because in amongst the pain and suffering there is joy and love, there is childhood. Continue reading “The Face Behind The Smile”→
Another 21 children’s stories have been shared, just the barebones of their experiences, a snippet of their journey, barely scratching the surface of what childhood cancer is.
It’s truly been a soul searching experience for me personally, I’ve cried almost daily, questioned myself and my intentions, felt angered and frustrated, as well as honored and humbled. I questioned my beliefs and wondered about hope. I experienced disappointment, I’ve felt like it was a battle that could never be won. I have learnt to persevere, beyond myself for something that is more about others and less about me.
Every day for the past 10 days I write and share these stories of children, some who are still enduring treatments, some who have come through the other side and some who have passed away. It’s been exhausting, it’s relentless, it’s heartbreaking, it’s what I remember my hours felt like when Dylan was going through treatment , and this is part of what these parents, the ones before and the ones still to come experience when they have a child with cancer. Continue reading “Faces of Courage – Childhood Cancer Awareness”→
Twisted – Learn to dance to the music of the Universe.
As 2016 draws to a close I was very tempted to say my “Thank F…ing goodness it’s over, what a crazy year it’s been filled with so many sad events” BUT my mind drifted to the joy, the courage, the incredible experiences, the amazing lessons, the unconditional love and kindness I was gifted, the time and generosity of those close to me and those I am connected to in spirit but yet to meet in the flesh. Both strangers and friends have enriched my life this year.
So many beautiful babies were born this year, lovers secured their commitments to one another, people went out exploring, on magical adventures, changed directions in their lives, achieved their dreams, shared special moments, comforted each other in moments of sadness. All plans became little floating bubbles, no rigidity at all. There was illness and healing, and well, so much more, we are living an extraordinary life with all its ups and downs and twists and turns.
How fortunate we were that we got our Australian citizenship at the beginning of this year, a dream I have had since I was 6 years old.
How fortunate I followed my intuition beyond the fear of judgement and posted on Facebook asking for help, I listened and then took action. Dylan’s life was saved through the efforts of many, what incredible things we have learnt, not just the medical mambo jumbo but the human stories, the compassion, the commitment, the generosity …. I could go on and on.
Gifted the opportunity to shed my armor and be vulnerable, and witness the magnificence of the human spirit, the courage of children, the love between brothers, the presence and acceptance of little people on massive journeys.
How fortunate I feel that no matter the physical distance I am still connected with those I love, technology has most certainly helped enrich my relationships, bridging time and distance, especially at those times of crisis but also times of shared joy.
Both tears and laughter have been my constant companions this year, how grateful I am that I can feel such depths of emotion.
This year has been profound, both terrifying and magnificent. I know, I love, I laugh, I am more because of these experiences.
Thank you for the music, and the incredible ride.
Ps the roller coaster was thrilling I am now ready to have a go on the ……. surprise me, I trust you!
This year was a little bit Twisted, as my world began to Unravel I had to learn to dance to the music of the universe, finding a way back to my essence has been a journey worth traveling. I am here now, I see my wisdom, as my perception colours my reality, I will always reserve the right to change, grow, expand and evolve.