The face behind the smile.We often hear comments about smiles, these smiles remind us that these are children first and foremost, they are children who want to enjoy their childhood with all the innocence and laughter childhood brings. Sadly in the world of childhood cancer much of that innocence is replaced by the harsh reality of life with all its ups and downs, successes and losses. Those moments are rarely seen in a photo or on a video.
That smile has nothing to do with cancer, it’s only there because this is a child, who no matter what traumatic experiences they have endured and will continue to endure will still smile, because in amongst the pain and suffering there is joy and love, there is childhood. Continue reading “The Face Behind The Smile”
The final 21 faces of courage have been shared.
And just like that, it’s done, end of treatment or there’s nothing more that can be done. “Come back in three months time for blood tests, scans and an oncology appointment.”
Continue reading “Faces of Courage – Childhood Cancer Awareness 🎗 3 – EXIT”
26 down 42 to go Faces of Courage
Every day for the past 10 days I write and share these stories of children, some who are still enduring treatments, some who have come through the other side and some who have passed away. It’s been exhausting, it’s relentless, it’s heartbreaking, it’s what I remember my hours felt like when Dylan was going through treatment , and this is part of what these parents, the ones before and the ones still to come experience when they have a child with cancer. Continue reading “Faces of Courage – Childhood Cancer Awareness”
This September I will be sharing over 50 individual children’s experiences with childhood cancer, it’s been an extremely humbling experience putting this together.
In the spirit of love these parents have entrusted me to share snippets of their child’s cancer experience in the hope that more awareness will be created around this devastating disease that is largely underfunded and under researched.
“It’s never about sympathy but more about understanding and acknowledgment.”
Continue reading “It’s not all black and white but rather a discovery of brilliant new colours.”
Sometimes it’s not the message but the way it is delivered that is painful.
So as you may know not all tumors are malignant (cancer), so when you have a tumor removed it is tested to see whether or not it is malignant. Obviously the results dictate much of how your forward journey into treatment will unfold. In my view, the way this news, your results are delivered to you is pretty important. Continue reading “Shoot the Messenger”
What wrong with this …. The stereotypes
Picture a sweetly smiling child, with a little twinkle in her eye, some colour on her cheeks and a beautifully shaped bald head. That’s the image of a child who has had treatment for cancer, and it doesn’t look bad, but it is what it is … An image, just a snapshot, possibly edited for visual effects. Continue reading “Childhood Cancer – Many Faces”
16 May 2017
Wide eyed and rapid breath, backed up into a corner. Like an animal trapped fearing for its life, that’s what I’ve been feeling like. I woke up this morning to an answer, finally. It’s been fear that’s been my constant companion, lurking in the shadows, unseen and unheard, but leading my every thought, feeling and decision. Continue reading “Journal Entry – Fear”
9 May 2017
My heart is pounding, I feel flustered, I’m swallowed by anxiety and drowning in desperation, my breathing is rapid, I’m struggling to open my eyes. Surrounded in stillness I gaze into the darkness, my eyes now open pooling with tears, my breath calms as I become fully awake, I realize it was just a nightmare as my mind flips through the scenes, I feel it on a whole other level, this time more real, as my heart begins to ache.
Continue reading “Journal Entry – Struggle”
5 May 2017
The curtains come down and the mic has been dropped, lights switched of and the seats been emptied. In the darkness, the silence is profound, this show is far from over.
Today I had a meltdown Continue reading “Journal Entry – Lost”
28 April 2017
I didn’t sleep well last night, my mind possessed by thoughts of the past years journey. Images of incredible moments, some swaddled in pain and others swollen with pride. So many diverse emotions, some feelings of utter helplessness and others feelings of deep appreciation. Much I thought I knew, reshaped, released or reviewed.
Just fleeting moments in the average life, Continue reading “Journal Entry – Fleeting moments”