No sports achievements or academic ones either, no public recognition or want for any pat on the back, he doesn’t care much for what others may think of him …. he is just being a remarkable human just being himself.
Another 21 children’s stories have been shared, just the barebones of their experiences, a snippet of their journey, barely scratching the surface of what childhood cancer is.
It’s truly been a soul searching experience for me personally, I’ve cried almost daily, questioned myself and my intentions, felt angered and frustrated, as well as honored and humbled. I questioned my beliefs and wondered about hope. I experienced disappointment, I’ve felt like it was a battle that could never be won. I have learnt to persevere, beyond myself for something that is more about others and less about me.
I so often read those ‘copy me and share’ Facebook posts about being available to help, about reaching out for help. I wonder how much weight is in that, I wonder how many people reach out when they need to. I know I struggled to ask for help, and so often I go to an auto response of ‘great thanks, how are you’. I rarely do that now days. I’m much more raw, naked and open … It’s not hard to know how I am feeling if you ask. It was Dylan’s challenging health journey that tipped me over the edge. Continue reading “Reaching out”→
“It’s been an honor Dad.
Today we are Celebrating a life well lived
He was loud
Funny and friendly
He was so loved
And he will be very fondly remembered.
Generous, a joker and so helpful, he accepted you as is ……”
We huddle tightly below deck, while the ferocity of the storm rips relentlessly at our vessel. Battered continuously, whipped around like a rag doll there’s little we can do. Our control swept right from under us we are left clinging on to one another. Then, just as suddenly as this all began, there’s a break in the clouds, there’s an uneasy calm, an almost sickening stillness. We are left bobbing in a very vast ocean, quite unsure of any direction.
The few things that keep us afloat during the brutality of this …. Limitless courage, unconditional acceptance, surrendered trust, total presence, and of course love. These things remain with us. Continue reading “Today”→
Twisted – Learn to dance to the music of the Universe.
As 2016 draws to a close I was very tempted to say my “Thank F…ing goodness it’s over, what a crazy year it’s been filled with so many sad events” BUT my mind drifted to the joy, the courage, the incredible experiences, the amazing lessons, the unconditional love and kindness I was gifted, the time and generosity of those close to me and those I am connected to in spirit but yet to meet in the flesh. Both strangers and friends have enriched my life this year.
So many beautiful babies were born this year, lovers secured their commitments to one another, people went out exploring, on magical adventures, changed directions in their lives, achieved their dreams, shared special moments, comforted each other in moments of sadness. All plans became little floating bubbles, no rigidity at all. There was illness and healing, and well, so much more, we are living an extraordinary life with all its ups and downs and twists and turns.
How fortunate we were that we got our Australian citizenship at the beginning of this year, a dream I have had since I was 6 years old.
How fortunate I followed my intuition beyond the fear of judgement and posted on Facebook asking for help, I listened and then took action. Dylan’s life was saved through the efforts of many, what incredible things we have learnt, not just the medical mambo jumbo but the human stories, the compassion, the commitment, the generosity …. I could go on and on.
Gifted the opportunity to shed my armor and be vulnerable, and witness the magnificence of the human spirit, the courage of children, the love between brothers, the presence and acceptance of little people on massive journeys.
How fortunate I feel that no matter the physical distance I am still connected with those I love, technology has most certainly helped enrich my relationships, bridging time and distance, especially at those times of crisis but also times of shared joy.
Both tears and laughter have been my constant companions this year, how grateful I am that I can feel such depths of emotion.
This year has been profound, both terrifying and magnificent. I know, I love, I laugh, I am more because of these experiences.
Thank you for the music, and the incredible ride.
Ps the roller coaster was thrilling I am now ready to have a go on the ……. surprise me, I trust you!
This year was a little bit Twisted, as my world began to Unravel I had to learn to dance to the music of the universe, finding a way back to my essence has been a journey worth traveling. I am here now, I see my wisdom, as my perception colours my reality, I will always reserve the right to change, grow, expand and evolve.