Shoot the Messenger

Sometimes it’s not the message but the way it is delivered that is painful.

So as you may know not all tumors are malignant (cancer), so when you have a tumor removed it is tested to see whether or not it is malignant. Obviously the results dictate much of how your forward journey into treatment will unfold. In my view, the way this news, your results are delivered to you is pretty important. Continue reading “Shoot the Messenger”

Childhood Cancer – Many Faces

What wrong with this …. The stereotypes

Picture a sweetly smiling child, with a little twinkle in her eye, some colour on her cheeks and a beautifully shaped bald head. That’s the image of a child who has had treatment for cancer, and it doesn’t look bad, but it is what it is … An image, just a snapshot, possibly edited for visual effects.  Continue reading “Childhood Cancer – Many Faces”

That Day a year ago

Brain Surgery

This day a year ago when Dylan had surgery Life was transformed into something more.

We were remarkably calm considering the situation. Due to the fact that it was a long weekend everything seemed quite calm and quiet in the hospital, the Saturday we went into emergence flowed smoothly, we were seen promptly by a lovely doctor who was originally from Cape Town, questions followed, a cannula was inserted, blood was taken, and then the resident surgeon who was called in, an amazing Syrian doctor who throughout Dylan’s hospital stay visited him daily, got things moving smoothly and efficiently, after an examination, questions and a look at the first MRI we were taken to get another MRI, there was no one else in the medical imaging department, so the process to have the hour long MRI was quick, a few spots on Dylan’s head were shaved and little markers were placed on his head, he had the MRI and things from that point went quickly and are blurry. Essentially taking him in to emergency that day was the best thing we did. Continue reading “That Day a year ago”

Reaching out

I so often read those ‘copy me and share’ Facebook posts about being available to help, about reaching out for help. I wonder how much weight is in that, I wonder how many people reach out when they need to. I know I struggled to ask for help, and so often I go to an auto response of ‘great thanks, how are you’. I rarely do that now days. I’m much more raw, naked and open … It’s not hard to know how I am feeling if you ask. It was Dylan’s challenging health journey that tipped me over the edge. Continue reading “Reaching out”

When worlds crumble

That Monday, a year ago, while I sat patiently waiting for Dylan to finish having the MRI cancer was the furthest thing from my mind. It wasn’t long that our entire world was left in uncertainty and disarray. An hour or so to be precise.  Continue reading “When worlds crumble”

Journal entry – Between the space

11 May 2017

Today I am grateful for those who have witnessed my truth, encouraged my authenticity and supported my vulnerability. Those who acknowledge others journeys no matter how rough and tumbled it may be are what I am grateful for. And I am grateful for the experiences which have allowed for my unraveling to open to more love and more empathy.  Continue reading “Journal entry – Between the space”

Journal Entry – Struggle

9 May 2017

My heart is pounding, I feel flustered, I’m swallowed by anxiety and drowning in desperation, my breathing is rapid, I’m struggling to open my eyes. Surrounded in stillness I gaze into the darkness, my eyes now open pooling with tears, my breath calms as I become fully awake, I realize it was just a nightmare as my mind flips through the scenes, I feel it on a whole other level, this time more real, as my heart begins to ache.

Continue reading “Journal Entry – Struggle”

Time


That day on the 3rd of May.

What are the odds.

It’s hard to believe we have Dylan’s three month check up coming up, exactly a year after his first visit to the doctor, with symptoms of headaches and vomiting, really thinking nothing serious was wrong. The first thing the doctor had said when seeing Dylan was “maybe his fringe is too long” , you know maybe his hair was in his face making him get headaches….. Boy was that far from the reality.

Continue reading “Time”

Another Layer


 

Six months ago, brain surgery had been done and dusted, 30 sessions of radiation had been completed and this was the time to recover and to prep for chemotherapy. They tell you that it’s a few weeks break in between treatment. However it’s not really a break. During this time Dylan required a number of test and procedures, including two separate surgeries, one being insertion of a double port and the other being the insertion of a PEG (Percutaneous Endoscopic Gastrostomy) – an abdominal feeding tube. Continue reading “Another Layer”

I couldn’t be prouder

image

Our lift patiently waited for us while Dylan finished vomiting this morning. He was that determined to go to RELAY FOR LIFE. It was a very last minute decision, yesterday a friend called me and told me all about it, I mentioned it to Dylan and he was keen, pending how he felt that morning. So with no real plans and not much knowledge of what we were really getting ourselves into we jumped in, and I’m so glad we did.
We did end up staying a little longer than planned, originally it was only for the first lap, but we met some great people, and were enjoying the fresh air and the awesome atmosphere that comes with being surrounded by groups with the same mission, and Dylan even got to enjoy a couple of laps in a wheelchair with Lara.
Continue reading “I couldn’t be prouder”